brown2020

Matthew Holt, the author of this presentation on Health 2.0, is the founder of The Health Care Blog and the Health 2.0 Conference, an event that has defined a new paradigm for ehealth and brings together a new generation of creative thought leaders. This year, the Health 2.0 Conference will be held jointly with the Center for Information Therapy on April 22-23, 2009 in Boston.

My Reaction to Health 2.0 and the Convergence with Information Therapy:

Health 2.0 makes Information Therapy practical and possible. Health 2.0 is about individuals creating and sharing more of themselves online in a way that improves their own health, the health of others they are connected to, and the health of the community as a whole.

Information therapy is based on the idea that what we think and believe — the content of our minds — can influence our health, either directly or through our behavior. We can change and influence the content of our minds and therefore also our health through information media.

Personalized health, however, is highly diverse, and if we had to design the right information therapy for the right person at the right time, we would never finish the job. So how does Health 2.0 make information therapy possible?

The needs in health care are complex, personalized, and ever changing. How can information therapy derived from a scripted template ever fully address them? Without Health 2.0, the greater the number and diversity of people with health needs, the more infinitely complex the situation becomes.

Health 2.0, on the other hand, changes the information therapy equation. The participants are co-creators, selectors, navigators, recommenders, and reviewers of content, so the more people involved and the greater their diversity, the more possible it is to meet an ever greater diversity of needs.

While some traditionalists might argue about the need for evidence-based information, the reality is that rich and diverse Health 2.0 communities are enabling an acceleration of evidence gathering. In the social media world, randomized controlled trials or A/B and multivariate experiments on the impact of information and ideas on user behavior are conducted every day.

This same quantitative and experimental methodology of the modern Web 2.0 Internet, when applied in Health 2.0, will start to advance our knowledge about information therapy, so that we may discover how the right information, at the right time, and in the right way can truly improve health.

Health 2.0 as a new data source – Presentation Transcript

1. User-Generated Healthcare & its potential as a data source research vehicle User-Generated Healthcare NCVHS 26 February, 2009 Matthew Holt Founder/Author, The Health Care Blog Co-Founder, Health 2.0 matthew@health2con.com
2. Media sources people trust User-Generated Healthcare Source: Globescan/BBC/ Reuters 2006
3. User-Generated Healthcare is Web 2.0? What the hell
4. User-Generated Healthcare
5. User-Generated Healthcare
6. eThis, That & The other vs. Web 2.0 WWW, born 1994-5 Web 2.0, nee. 2005-7 publishing, searching, uploading, sharing, reading collaborating, searching • Content Management • Social networks – Syndicated – Blogs, microblogging (hi, Tweeps!) – Subscribed – Wikis User-Generated Healthcare – Internally created – Forums, Groups, Discussions – Integrated from data sources – Video/content sharing • “Webmaster” regulated • Sharing Tools – Institutional publishing – Community policing standards – Posting guidelines – Prescribed branding • Dominant letters • Dominant letters – r, z, x, 2.0 – e, later i – Dash optional – Periods, but no vowels allowed Adapted/stolen from Gale Wilson-Steele, CareSeek; Jane Sarasohn-Kahn
7. Web 2.0: O’Reilly’s Core Competencies • Services, not packaged software, with cost-effective scalability • Control over unique, hard-to-recreate data sources that get richer as more people use them User-Generated Healthcare • Trusting users as co-developers • Harnessing collective intelligence • Leveraging the long tail through customer self- service • Software above the level of a single device • Lightweight user interfaces, development models, AND business models Source: Tim O’Reilly What is Web2.0 9/2005
8. What the hell ? is ill st User-Generated Healthcare u yo g? e r rin A de n o w
9. What is “Health 2.0” Matthew Holt’s best guess at the constituent parts • Personalized search that finds the right answer for the long tail • Better presentation of integrated data • Communities that capture the accumulated User-Generated Healthcare knowledge of patients and caregivers; and clinicians • Intelligent tools for content delivery And just maybe…. Patients (really!) in charge of their own care?
10. Health 2.0: User-Generated Healthcare Social CONTENT Networks User-Generated Healthcare Search Tools TRANSACTION
11. User-Generated Healthcare Personalized search
12. User-Generated Healthcare Intelligent Communities
13. Intelligently presenting content User-Generated Healthcare
14. Highlights from the 1st Edelman Health Engagement Barometer 7 in 10 adults demand engagement… especially for personal health issues that matter most to them • 22% of the population are Health Info-entials • Most frequently accessed channels of health information: User-Generated Healthcare – Conversations with friends/family (69%) – Conversations with my doctor or healthcare provider (65%) • Social media is more credible when coupled with health expertise – Top social medium: Health expert blogs (86%) – Other most credible media include personal blogs, social networking sites, video-sharing sites, and Wikipedia Source: Edelman Health Engagement Barometer, survey of 5,000 consumers in USA, UK, France, Russia, China.
15. Search & Online Communities + User-Generated Healthcare
16. Emergence of Consumer-Focused Tools • Personalized • Analytical User-Generated Healthcare • Supporting Decisions • Enabling Transactions
17. Health 2.0: User-Generated Healthcare Social Content Networks User-Generated Healthcare Search Tools Transaction Data
18. So now what is “Health 2.0”? Holt’s evolving view of a moving target • Personalized search that looks into the long tail, but cares about the user experience • Communities that capture the accumulated knowledge of patients and caregivers; and clinicians – and explain it User-Generated Healthcare to the world • Intelligent tools for content delivery – and transactions • Better integration of data with content And it’s not a maybe anymore… Patients increasingly guiding their own care
19. A continuum of Health 2.0? User-generated Users connect to Partnerships to Data drives health care providers reform delivery discovery Use of Web2.0 Tools and communities Reforms in payment All the data collected in User-Generated Healthcare technologies for created as part of structures, a combination of a, b & patients and Web2.0 in health care, transparency, and c produces leaps physicians to which then becoming technology produce ahead in the process communicate and connected to the changes in delivery of care and eventually investigate without system (i.e. creating structure and process in drug and procedure connecting to the appointments, around chronic care discovery. health care system conducting treatment, excellence transactions, centers for particular managing clinical procedures, etc. events)
20. The Present and Potential of Health2.0 Data drives Ultimate discovery Impact Partnerships to User-Generated Healthcare reform delivery Users connect to Providers User-Generated Healthcare Likelihood
21. Data/Research: Patients’ opinions User-Generated Healthcare
22. Data/Research: Doctors’ opinions User-Generated Healthcare
23. Communities as Research Vehicles User-Generated Healthcare
24. User-Generated Healthcare A Health 2.0 trial?
25. User-Generated Healthcare A Health 2.0 trial?
26. User-Generated Healthcare A Health 2.0 trial?
27. User-Generated Healthcare Individual & Crowd Data
28. Delving into the long tail: CureTogether User-Generated Healthcare
29. Understanding the whole “integrated” patient User-Generated Healthcare
30. Communities as Research Vehicles User-Generated Healthcare
31. User-Generated Healthcare
32. So what should NCVHS & AHRQ do? (how should you spend your $1.1 billion!) • Figure out partnerships • Fund some of these little online patient communities—too important to let them die & it will be cheap! User-Generated Healthcare • Integration, integration, & smart use of big & disparate data sources • Suggest to those with the $17 billion, to reach out to their patients everywhere they are & enforce reporting back